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EARLY LEARNING / Parents of Children with Special Needs / Re: Please introduce yourself!
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on: August 26, 2013, 06:19:28 PM
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Hi every one I have just joined brill kids and I am really impressed with the LR I would like to introduce my kid who is a special need kid with a rare chromosomal deletion. There are just 20 known cases in the world! Well, he has sensory processing disorder, hypotonia,is very underweight, delayed in fine , gross motor milestones. He can walk independently but cannot step up / down stairs on his own , can't run/ jump He babbles but not words yet. He goes to preschool has an IEP, we also do private OT and PT for him.in process for ST. I try to teach him but I have no idea how much he understands He is 3.5 yr old.
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EARLY LEARNING / Parents of Children with Special Needs / New and need advice
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on: August 26, 2013, 03:46:49 PM
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Hi every one I have just joined brill kids and I am really impressed with the LR I would like to introduce my kid who is a special need kid with a rare chromosomal deletion. There are just 20 known cases in the world! Well, he has sensory processing disorder, hypotonia,is very underweight, delayed in fine , gross motor milestones. He can walk independently but cannot step up / down stairs on his own , can't run/ jump He babbles but not words yet. He goes to preschool has an IEP, we also do private OT and PT for him. I try to teach him but I have no idea how much he understands I would like to get advice from you guys about how to help him to learn. Where should I start? What can be done about his speech? I would appreciate any help or suggestions Forgot to add he is 3.5 yrs old now. Please advice me if its too late to start learning systems mentioned here with him? Many thanks in advance
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Parents' Lounge / Introduce Yourself / Re: HI New here .. want to introduce myself
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on: August 15, 2013, 04:05:15 PM
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He has sensory processing disorder , chromo deletion. 2q32.2-33.1 it's a rare deletion and there are only 20 known cases in the world so not much information is available . Due to which he has hypotonia(low muscle tone) . He walked really late , he was almost 2 yrs. He babbles but no word yet. Has fine motor delays , also he cannot climb up down stairs independently. needs support for it. His way to communicate is pointing, gestures . I tried teaching him alphabets , numbers colors but he was not interested . He still scribbles with crayons. Receptively he functions at an 12-18 month level. Follows one step directions. I have downloaded the trial version of LR. Need to study it. I would currently like to focus on his speech , language and communication. Please send me suggestions if you could . I am reading some posts on the forum too Many thanks in advance.
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Parents' Lounge / Introduce Yourself / HI New here .. want to introduce myself
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on: August 14, 2013, 04:15:35 PM
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HI everyone, hope things are good on your end. My son is 3.5 year old, he is a sensory kid, with a rare chromo disorder. he doesnt talk and has delays in fine , gross motor areas. i came to know about brillkids via a group. i would appreciate any ideas , advice suggestions from you about is it too late for him to start on a reading and math program? how would i go about it etc. i am glad to be here and its an encouragement for me many thanks in advance
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